05 OCT 2016
Home Our Campaign Quality of Life

Quality of Life

Access to medical and therapeutic care available is essential to helping our community members live the fullest possible life. But the most specialised doctors and therapists will be the first to admit that even the best possible medical intervention can only go so far.

Why quality of life is an issue

Cerebral palsy (CP) is not just a day-by-day reality it has a moment-by-moment impact in people’s lives—not just in the lives of those with CP, but among families and caregivers, as well. Whether or not one of our community members has a fulfilling life has just as much to do with the quality of that life.

Access to tools and products

There are, of course, many specific products—including non-spill cups, the ability to type on a computer using an eye scanner, or an electric wheelchair—that can have a powerful effect on the quality of life of our community members. Our most recent World CP Day competition, for example, illustrated the need for a safer living environment by suggesting the possibility of a ‘sponge house’. But the needs of most of our community members are much more extensive and basic. What, for example, is to be done when a person who lives in a country in which adult diapers (nappies) are simply not available?

Access to information

Where can a parent go to get advice about the best way to care for their child? Where can a traveler find information about the most accessible tourist attractions? Where can a man with CP learn to become a writer for the local paper? Where can a teenager get access to the film, Margarita with a Straw or Enter the Faun, to find the inspiration to live their own life? Where can a woman get advice about how to become a standup comedian? The sea of needs, and the questions that arise from those needs, are vast. But it almost assured that they have been asked and answered by other members of our global community.

Access to support

Sometimes an ‘advanced’ society has become that way at the expense of the kind of familial and community networks that have historically supported individuals and families. In other societies, there are no support networks because of the stigma surrounding disability or the inability of people to connect across physical and digital divides. We have the chance to build supportive communities—first online, and eventually ‘on the ground’—that can help improve the social, economic and personal quality of life for people with CP.

 


Stories of change

Whether local or global, change often starts with one or two people and a big idea:

The yooocan team

A new global online marketplace for disability services and products has recently launched in the USA.

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Ryan Raghoo

A young British man with cerebral palsy (CP) has made it his mission to change the way the world perceives people with disability.

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CPTV - Brad Searle and his son Jacob

Information and education leads to empowerment and advances that will help improve the quality of life for everyone with cerebral palsy (CP). That’s the firm belief of USA's Brad Searle, creator of the world’s first dedicated TV app for adults and children with CP – Cerebral Palsy Television (CPTV)

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Dr Brian Hoare - CPtoys

It takes passion and dedication to innovate a game-changing tool for children with cerebral palsy (CP), traits that Dr Brian Hoare has in abundance. His CPtoys™ app makes toys-as-therapy an easy choice.

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reny_son

An organisation in Indonesia is challenging outdated and substandard approaches in an effort to improve the welfare of children with cerebral palsy in their country.

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Rachael Wallach

The brainchild of wheelchair user Rachael Wallach, #HackOnWheels is changing the way we think about wheelchair production, in a very clever way.

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Shira Gal a3i

A3i in Israel is the first technology accelerator devoted to supporting entrepreneurs who want to create solutions for people with a disability.

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Rand_a

Rand Surbey and Jason Cole are pushing the boundaries of physical activities for people with cerebral palsy and having a lot of fun on the way.

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CP Teens UK

Everyone needs a tribe. A support system to rely on through the good times and bad.

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Leigh Lockrey

Creating a global online CP community, one click at a time.

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